Patricia Durão

Patricia’s eldest daughter Amelie was diagnosed with Tay-Sachs in 2011 at 15 months of age and upon finding that there was no dedicated charity providing support for families affected by this disease she set set-up the Cure & Action for Tay-Sachs (CATS) Foundation with her husband Dan.
Since the charity was launched, Patricia has been able to grow The CATS Foundation so that it now offers a variety of services to its family members, including equipment, respite trips and funeral funding grants. The charity was also recently nominated as the patient organisation for a clinical trial into Tay-Sachs using gene therapy and Patricia is actively involved in this ground breaking work.
Patricia is also the nominated representative of The CATS Foundation at the European Tay-Sachs and Sandhoff Charity Consortium (ETSCC). The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs and Sandhoff and the three aims of the ETSCC are to raise awareness of the diseases, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.
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