• 7th European Tay-Sachs & Sandhoff Family Conference

    12th – 14th July 2019

    Würzburg, Germany

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The European Tay-Sachs and Sandhoff Family Conference is the one event that brings together families affected by the diseases. During the weekend there is plenty of opportunity to meet other people and the research teams.

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Add to My Calendar 2019-07-012 09:30:00 2019-07-14 17:00:00 Europe/London 7th European Tay-Sachs & Sandhoff Family Conference The 7th European Tay-Sachs & Sandhoff Family Conference in Würzburg. Würzburg, Germany European Tay-Sachs & Sandhoff Charity Consortium info@cats-foundation.org

THE SCHEDULE

Arrival / registration

09:30 AM

Introduction to the conference

by Folker Quack

10:00 AM

Hand in Hand charity presentation

by Birgit Hardt

10:20 AM

Genotype/Phenotype Correlation

by Prof. Sandhoff

10:30 AM

Coffee Break

11:15 AM

The CATS Foundation charity presentation

by Patricia Durao

11:40 AM

Psychosocial determinants in the medical care of patients with rare diseases

by Dr. Tatiana Bremova

11:50 AM

Epilepsy in patients with a LSD – treatment options

by Prof. Hahn

12:15 PM

Lunch

13:00 PM

ACTAYS charity presentation

by Beatriz Fernández

14:30 PM

GM2 research project at Seville University

by Dr. Cordero

14:40 PM

VML charity presentation

by Benoit Clermont

15:25 PM

Coffee break

15:35 PM

Acetyl-DL/L-leucine for the treatment of lysosomal storage diseases: evidence, mechanisms and clinical trials

by Prof. Strupp, Prof Platt & Taylor Fields

16:15 PM

DOCE charity presentation

by José Daniel Vilhena

16:50 PM

Group picture

by Birgit Walther-Luers

17:00 PM

Remembrance ceremony

17:15 PM

Dinner

19:00 PM

Arrival

09:30 AM

Substrate reduction therapy

by Prof. Platt

09:45 AM

Study designs for rare diseases

by Prof. Beck

10:30 AM

Coffee Break

11:15 AM

Two molecular therapies

by Prof. Cox

11:45 AM

Lunch

12:30 PM

Introduction to Axovant Gene Therapies and AXO-AAV-GM2, a novel gene therapy for GM2 Gangliosidosis

by Parag Meswani

14:00 PM

Distinctive features regarding phenotypes and response to treatment

by Dr Mengel

14:45 PM

Coffee break

15:30 PM

Q & A session

by Moderator Prof. Beck

15:45 PM

Update on the patient registry for Tay-Sachs & Sandhoff

by Daniel Lewi

16:30 PM

Close of the conference

by Folker Quack & Daniel Lewi

16:45 PM

WHAT TO EXPECT

Two days

The conference will feature some fantastic speakers who will make the event a huge success.

Location

Würzburg, is a city in the region of Franconia, northern Bavaria, Germany and is completely surrounded by hills.

Free food and drink

All food and drink will be provided – including a welcome dinner the night before the conference.

Accommodation

Located beside the River Main, the hotel offers wonderful views of the Marienberg Fortress, a modern spa with indoor pool, and elegant rooms.

WHAT PEOPLE SAYS

They love it. Read what the previous attendees had to say!

Where to stay

All attendees will be able to book a room at the Maritim Hotel in Würzburg. This is also the venue of the conference.

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Rooms

Single, double and family rooms available

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Hotel

Maritim Hotel Würzburg

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Conference room

Meeting facility at Maritim Hotel

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PRICING

To attend all you have to pay for is your accommodation – everything else is covered.

Hotel rooms
tbd
  • Single Room: € tbd
  • Double Room: € tbd
  • Triple Room: € tbd
  • Family Room: € tbd

RESERVE NOW

Food & drink
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  • Breakfast included
  • Buffet lunch included
  • Welcome dinner included
  • Networking dinner included

RESERVE NOW

Materials
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  • Conference brochure included
  • Gift for families included
  • Instamemory participation
  • Presentations circulated post event

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FREQUENTLY ASKED QUESTIONS

How can I get to the venue?

The conference venue can be accessed by rail, air or by road. Use the contact form to be sent more details

What about accommodation?

The hotel accommodation is at the same place as the conference itself.

How do I book?

To book your accommodation please contact us.

Are the places limited?

Yes, we have limited numbers at the conference room and the events tend to get full very quickly, we advise to book as soon as you can.

GET DIRECTIONS

Fill the form below to get directions to our event location

Enter Direction from and Travel Mode from the left form to see directions.

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ADDRESS

Maritim Hotel

Pleichertorstraße 5

97070

Würzburg

Germany

SEND US A MESSAGE

If you have any questions about the event, please contact us directly. We will respond for sure.

LETS GATHER TOGETHER

JOIN THE CONFERENCE

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